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< Back to researchers

APPrivoiser l’Aphasie Primaire Progressive (APP) program

Main researcher

  • Laura Monetta

Partners

  • ARTÈRE
  • Research Chair in Primary Progressive Aphasias - Lemaire Family Foundation (Dr. Robert Laforce & Dr. Monica Lavoie)

The APPrivoiser l’Aphasie Primaire Progressive (APP) program is a free information and support program for people living with APP and their loved ones. The APPrivoiser l’APP program co-construction team is made up of three main partners: the community organization ARTÈRE, the Chaire de recherche sur les aphasies primaires progressives – Fondation de la famille Lemaire (Dr. Robert Laforce & Dr. Monica Lavoie) and Université Laval/Cirris (Dr. Laura Monetta).

Program objectives:
– Inform people living with PPA and their loved ones through information sessions led by a facilitator and expert video vignettes aimed at demystifying the disease;
– Create a place for sharing and belonging.

Topics covered:
Each theme is addressed in a video capsule by an expert: neuropsychologist, speech therapist, notary, etc.

APA basics :
– PPA variants and their evolution
– Diagnosis and management
– Everyday impact of language symptoms

Facilitating communication with a person with PPA:
– Strategies for facilitating communication
– Assisting communication

Everyday impact of PPA on :
– Feeding and motor skills
– Cognition
– Autonomy
– Social participation and leisure

Caregiving issues :
– Impact of PPA on behavior
– The disease acceptance process
– Legal, placement and end-of-life issues

Format:
– Six (6) sessions
– Session length: 1h30
– A participant’s notebook is handed out at the first meeting of the program, so that participants can annotate and reread the important information covered during the program.

 

Contact your local association to check program availability.

For further information: info@plateformeapp.ca

Article (in French) : 
Coconstruction d’un programme psychoéducatif d’information et de soutien pour les personnes vivant avec une aphasie primaire progressive et leurs proches

Cirris

Centre interdisciplinaire de recherche en réadaptation et intégration sociale (Cirris)

Hamel site
525, Wilfrid-Hamel Boulevard, Wing H suite 1300,
Quebec (Quebec) G1M 2S8

Saint-Louis site
2975, chemin Saint-Louis, Wing C suite 300,
Quebec (Quebec) G1W 1P7

cirris.administration.ciussscn@ssss.gouv.qc.ca

Our Center
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  • Participate in a research project
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The Interdisciplinary Research Center on Rehabilitation and Social Integration (Cirris) is a research center of the Integrated University Health and Social Services Center (CIUSSS) of the National Capital, affiliated with Laval University and recognized by the Quebec Research Funds.

  • Centre intégré universitaire de santé et de services sociaux de la Capitale-Nationale
  • Université Laval
  • Fonds de recherche du Québec

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